FROM A PERSONAL AND PROFESSIONAL PERSPECTIVE
TODAY?
            Thomas L. Clouse, M.D.

                       Walking With Ataxia             

                        

TOMORROW!

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 TLC to go!


Walking With Ataxia
and
Cerebellar Degeneration

article

 Personal Information
 
   About Me
     My Personal Journey
     Contact Me

 
Basic Overview
 
   Concepts to understand
     Basic problems and
         solutions

    Alert & Danger items
    Points to remember

The nitty gritty (text)
 
   Why do I have to work
          so damn hard?

     You are your enemy.    
     Believe you can.
     Let's begin.
     To move, to walk.
     Stepping out.
     Not shuffling.
     It's not just walking.
     Remember when.
     The dance.

 Comments from
     around the globe

 
    your voice, your story
      supportive letters
      emails
      articles of interest

 Disorder info
  
 detailed information for
     Ataxia defined
     Spinocerebellar Atrophy
   
 Spinocerebellar Atrophy (2)
    Ataxia
            Identified Genetic

         & Biochemical Defects

     Multiple System Atrophy
     Friedreich's Ataxia
     Parkinson's Disease


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Your personal health
         We can all be healthier
         Basic Nutrition
         Cellular Nutrition
         Oxidative Stress
        
 
Links to other sites

 

       


 

TLC TO GO...

          Beginning in the summer of 2009 I became a "full time RVer"; meaning I left the clutter, the house and moved into the motor home that's pictured above.  There were a handful of reasons for that decision and I'm enjoying the transition.  In addition to the other perks of this lifestyle, it also affords me the opportunity to meet and work with many ataxic individuals around the country.  My '09, '10 and '11 Ataxia Tours, which collectively covered almost 15,000 miles, were very productive with quite a few ataxic folks now walking and moving better.

Some of those people have provided comments which I have posted on this site for your review. 

 

     My growing travel itinerary for 2012 is posted below and there are sure to be some modifications along the way.

Want to be added to the list?  Send a request to me too!

 

Ataxia on "wheels" has taken on a whole new concept!


Ataxia tour schedule for 2012:
 

What you should expect to provide and/or scrounge up is posted below the schedule.

                                               arrive          depart    
   

     Jacksonville, FL                  Jan 2             Jan 23

     Aventura, FL                      Jan 23           Feb 6

     Jacksonville, FL                  Feb 13          Mar 4

     Chattanooga, TN                Apr 6            Apr 16

     Cincinnati, OH                    Apr 17          Apr 26    
     Philadelphia, PA                 Apr 27           May 18

     Fox Lake, IL                      May 21         Jun 4

     St. Paul, MN                      Jun 4             Jul 2

     Des Moines, IA                  Jul 2              Jul 16

     Denver, CO                       Jul 17            Aug 6

     Nampa, ID                         Aug 8            Aug 20

     Snohomish, WA                 Aug 27          Sep 10

     San Francisco, CA             Sep 17          Oct 15

     Monterey, CA                    Oct 15          Nov 5

     Huntington Beach, CA        Dec 1

     Flagstaff, AZ                       spring 2013

     Phoenix, AZ

     Albuquerque, NM

         

         

    If you happen to be near one of these locations and want to be included please send me your request.

 

 

What you will need to provide and/or scrounge up:

   Ø  A place for us to work.  A large room with lots of floor space and an empty wall or two.
   i.    A 20 x 40 foot room is ideal, but if that's not possible get the biggest one you can.
   ii.    The floor needs to be clean, hard and smooth.  Tile, concrete, laminate, hardwood or commercial grade carpeting are ok.
   iii.    Normal carpet in the normal home has too much cushion for these purposes.
   iv.    Open floor space!  We require open floor space.  And don't forget the bare walls to at least head high.
   v.    Try your best to keep me out of a place with pets.  I have allergies to cats and dogs. 
   vi.    My reaction to them is "brain fog" and fatigue and it screws me up for a couple days after a good dose.
   vii.    The room doesn't need to be fancy, just functional.
   viii.    If needed try asking your church, YMCA, health club or whatever. 
   ix.    Your garage is ok if that is where we have to be but without the criteria above we're wasting time.
   x.    We will be doing some outside work towards the end of the sessions and I'll pick that area when I get there.
   xi.    An outside area for the beginning stuff doesn't usually work out very well.  Trust me.

 

   Ø  My schedule while I'm there is very flexible (with very few exceptions) and you are normally the only reason I'm coming there.
   i.    I will find a RV park within your area to set up my motor home while I'm there.  I'm always home that way.
   ii.    For those areas where there is more than one of you please try to get one place for all of us to work out of if possible.  (individual sessions)
   iii.    An exception to my flexibility is I normally don't care to work late in the evenings.
   iv.    With few exceptions I will only work with you every other day.
   v.    You need a day in between to think about, practice and use what we cover. 
   vi.    And you will also likely need time to recover because I'm going to work you.
   vii.    Each session will be somewhere between 1-3 hours depending on your "stamina" and how many people I'm working with that day.
   viii.    I video record as much of this as I can and therefore will provide you with a "release form" to cover it.
   ix.    The video recorder is also the reason why we need the bigger room.
   x.    The videos are also the documentation and proof I need for the people we're trying to show "this stuff works".
   xi.    What can you do before I get there?  Tone up, exercise and get off your butt if you aren't already.
   xii.    What's the one big comment I'm routinely hear going into the 2nd session?  "I didn't realize I was that out of shape."
   xiii.    Are we going to be doing strenuous stuff?  NO. 
   xiv.    We're going to be working on the basics of movement and how to apply them in everyday life.

      The next question routinely is, “How much do you charge?”  I don’t charge anything.  I only ask for donations to help me meet my expenses     to come and work with you in your area.  It would be nice if money would have nothing to do with this but the price at the pumps are a reminder to us all of the times we live in.